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CMTRF Launches CMT Action Month with a Jam-Packed September of Events

<p class&equals;"wp-block-paragraph">In honor of CMT Action Month this September&comma; the Charcot-Marie-Tooth disease Research Foundation &lpar;CMTRF&rpar; is excited to unveil a month-long lineup of events&comma; bringing together artists&comma; advocates&comma; and the CMT community from across the U&period;S&period; The series of events aim to raise awareness and critical funds for Charcot-Marie-Tooth disease &lpar;CMT&rpar; research&period; With an estimated one in 2&comma;500 individuals affected—the same prevalence as multiple sclerosis—the urgency for further research and treatment has never been greater&period;<&sol;p>&NewLine;&NewLine;&NewLine;&NewLine;<figure class&equals;"wp-block-image size-full"><img src&equals;"https&colon;&sol;&sol;countrymusicnewsblog&period;com&sol;wp-content&sol;uploads&sol;default2&period;png" alt&equals;"Hot off the press at CountryMusicNewsBlog&period;com&excl;" class&equals;"wp-image-33813"&sol;><&sol;figure>&NewLine;&NewLine;&NewLine;&NewLine;<p class&equals;"wp-block-paragraph">Throughout September&comma; supporters can look forward to&colon;<&sol;p>&NewLine;&NewLine;&NewLine;&NewLine;<&excl;--more-->&NewLine;&NewLine;&NewLine;&NewLine;<p class&equals;"wp-block-paragraph"><strong>GRAMMY® <&sol;strong>Award-Winning Singer&sol;Songwriter <a href&equals;"https&colon;&sol;&sol;u7061146&period;ct&period;sendgrid&period;net&sol;ls&sol;click&quest;upn&equals;4tNED-2FM8iDZJQyQ53jATUWo-2BPR-2BcZ9iU7hsSo3jl8N4-3DeIye&lowbar;zQ55iVYmGghdP4krZZq-2FjkjAVWwVilA3RA5armS2IoTvYCqyuKg55y8LZGxm84Qvc5PnwizgRl-2BzVOwxcd2w5L-2Fwz-2FYdS2PetB5OmS1giAXdWTsLvmfS8IgYH3RygE3Lb7nZeYtir4Bb7TbeK2trnAdD9CHBvGT4yzm-2FEbnzHwCQRowiievyKc2fb-2BXu4LWD-2Bp4tfaJvUroVcC0mMVvFsLkE-2FedrEqKifItAl690So0scRXCTmSCs2X-2F7KAfgzDuYrVY7ro9tA5CFlkvrv5ietsWGf5sruU7ZwrWv9f2KAzMNDztOr7BnVCkxNMqSEw-2F4D-2FoL52cKglHkjs-2BWPWLosMiuLVJEgFUCGuTbPlp-2BDc-3D" target&equals;"&lowbar;blank" rel&equals;"noreferrer noopener">Linda Davis<&sol;a>&colon; Nashville&&num;8217&semi;s beloved &OpenCurlyQuote;song stylist’ Linda Davis&comma; who has a personal connection to CMT&comma; will help CMTRF highlight advocacy for Charcot-Marie-Tooth disease research during CMT Action Month&period;<&sol;p>&NewLine;&NewLine;&NewLine;&NewLine;<p class&equals;"wp-block-paragraph"><strong>&&num;8220&semi;<&sol;strong>CMT is more than just a diagnosis&semi; it&&num;8217&semi;s a reality that affects the whole family&comma; challenging them in ways many can&&num;8217&semi;t imagine&period; Seeing its impact firsthand&comma; I am more committed than ever to champion the cause&comma;” said Davis&period; &OpenCurlyDoubleQuote;In September&comma; as we rally together&comma; let&&num;8217&semi;s shine a light on those affected by CMT and work tirelessly to accelerate research towards treatments and cures&period;”<&sol;p>&NewLine;&NewLine;&NewLine;&NewLine;<p class&equals;"wp-block-paragraph"><strong>G<a href&equals;"https&colon;&sol;&sol;u7061146&period;ct&period;sendgrid&period;net&sol;ls&sol;click&quest;upn&equals;4tNED-2FM8iDZJQyQ53jATUbFlU-2BooM8o8O-2FvR-2FKuGbTExRJWp0U2us-2FWqX13ebZz7Hnl05enOEB6QDmUK6xoHa-2FvOmpswxnzh9zTK4TeIyinRMd-2B0Lz105mxxFrwhp5qVHVl3LkF3jSuJWyM8WSip9AROhFK6c-2Bmc1DBFroUjTcJc0akXGBojW40VbLv1FQtNDDGs3hRaxHa9cWGW8FOQYg-3D-3DqGHE&lowbar;zQ55iVYmGghdP4krZZq-2FjkjAVWwVilA3RA5armS2IoTvYCqyuKg55y8LZGxm84Qvc5PnwizgRl-2BzVOwxcd2w5L-2Fwz-2FYdS2PetB5OmS1giAXdWTsLvmfS8IgYH3RygE3Lb7nZeYtir4Bb7TbeK2trnAdD9CHBvGT4yzm-2FEbnzHwCQRowiievyKc2fb-2BXu4LWD-2Bp4tfaJvUroVcC0mMVvFsBVUoHNvM7kTimEzIrfQc75esw7KoYVY82KPILf6kfc4mHbGjNm9k58x033yODeuYgRUSVPn7tqjBt-2BGAL1P97m-2FZlJc71Eje6W9hxZZNJF5ZSIn50EANP50Qc81pVUm8hkZHSq902E97ma2Dso6gJE-3D" target&equals;"&lowbar;blank" rel&equals;"noreferrer noopener">l<&sol;a><a href&equals;"https&colon;&sol;&sol;u7061146&period;ct&period;sendgrid&period;net&sol;ls&sol;click&quest;upn&equals;4tNED-2FM8iDZJQyQ53jATUbFlU-2BooM8o8O-2FvR-2FKuGbTExRJWp0U2us-2FWqX13ebZz7Hnl05enOEB6QDmUK6xoHa-2FvOmpswxnzh9zTK4TeIyinRMd-2B0Lz105mxxFrwhp5qVHVl3LkF3jSuJWyM8WSip9AROhFK6c-2Bmc1DBFroUjTcJc0akXGBojW40VbLv1FQtNDDGs3hRaxHa9cWGW8FOQYg-3D-3DjyI1&lowbar;zQ55iVYmGghdP4krZZq-2FjkjAVWwVilA3RA5armS2IoTvYCqyuKg55y8LZGxm84Qvc5PnwizgRl-2BzVOwxcd2w5L-2Fwz-2FYdS2PetB5OmS1giAXdWTsLvmfS8IgYH3RygE3Lb7nZeYtir4Bb7TbeK2trnAdD9CHBvGT4yzm-2FEbnzHwCQRowiievyKc2fb-2BXu4LWD-2Bp4tfaJvUroVcC0mMVvFsPCxIDytdEc-2F3YiLTpjADl45fX88okOB-2FVE2tQcQxHNv0uzudyNrf479PDQ5y2MleJG2atGOIhCT6M8n2lDfVC-2BpxAuyijVqc0yf4okUVtDaz9IQZUyhiyw3VSlwvUN-2FwBW0videCi1LaYYIkmUAHYE-3D" target&equals;"&lowbar;blank" rel&equals;"noreferrer noopener">obal CMT Research Convention<&sol;a><&sol;strong>&comma; Sept&period; 22-23&colon; Each year&comma; CMTRF convenes a Global CMT Research Convention&comma; bringing together the world’s leading experts in CMT research&comma; biotech&comma; and pharma&comma; with CMT patients and their families in one event to discuss the dynamic changes in CMT research for treatments and a cure&period;<&sol;p>&NewLine;&NewLine;&NewLine;&NewLine;<p class&equals;"wp-block-paragraph"><strong>T<a href&equals;"https&colon;&sol;&sol;u7061146&period;ct&period;sendgrid&period;net&sol;ls&sol;click&quest;upn&equals;4tNED-2FM8iDZJQyQ53jATUYfWf-2F3PDNcSVUJNhW-2FHm9PFteIqOUhyA0gssQDnbyb46V7J0mGu4Bv12IV17cUaD2Cxihy9Y5UGyR4u6un5cYRJA4OhIrC3KXbGRJDX9QqfAN-2FOuxiFgIwohDCws1HnKuEk14u3-2B23txgNQ8qridE0-3Dwffy&lowbar;zQ55iVYmGghdP4krZZq-2FjkjAVWwVilA3RA5armS2IoTvYCqyuKg55y8LZGxm84Qvc5PnwizgRl-2BzVOwxcd2w5L-2Fwz-2FYdS2PetB5OmS1giAXdWTsLvmfS8IgYH3RygE3Lb7nZeYtir4Bb7TbeK2trnAdD9CHBvGT4yzm-2FEbnzHwCQRowiievyKc2fb-2BXu4LWD-2Bp4tfaJvUroVcC0mMVvFsF4rf-2B2iVWoY-2FBsxV3LYsX9K0SrRiZx7D9rGxoHKj5bb2rrfT75BYa-2Brn4aWhdwMDADKr4ZOTIk2b0m58RARF7iWZ14Flja67aSusX-2BbvwHfQXXsNEPl9SODhWiA8Rx09Wckv0uiowx2IoSilBeaMIs-3D" target&equals;"&lowbar;blank" rel&equals;"noreferrer noopener">urn Up the Volume&excl; Auction &amp&semi; Raffle<&sol;a><&sol;strong>&comma; through Sept&period; 30&colon; In collaboration with Scientific American&comma; fans and supporters are presented with a golden opportunity to bid on exclusive music items&comma; including a Gibson Peter Frampton Autographed Les Paul Custom Guitar Package&comma; an <a title&equals;"Alan Jackson" href&equals;"https&colon;&sol;&sol;ticketmaster&period;evyy&period;net&sol;c&sol;1224809&sol;264167&sol;4272&quest;subId1&equals;WPScmnbAJackson&u&equals;https&percnt;3A&percnt;2F&percnt;2Fwww&period;ticketmaster&period;com&percnt;2Falan-jackson-tickets&percnt;2Fartist&percnt;2F769574&partnerpropertyid&equals;5213910&MediaPartnerPropertyId&equals;5213910">Alan Jackson<&sol;a> Autographed Straw Stetson Hat&comma; an <a title&equals;"Eric Church" href&equals;"https&colon;&sol;&sol;countrymusicontour&period;com&sol;eric-church-tour-dates&sol;">Eric Church<&sol;a> Heart &amp&semi; Soul box set&comma; a Marriott Shoals Hotel &amp&semi; Spa Package&comma; a recording session at the legendary FAME Recording Studios&comma; and additional autographed items from <a title&equals;"Chris Stapleton" href&equals;"https&colon;&sol;&sol;stubhub&period;prf&period;hn&sol;click&sol;camref&colon;1100ljXyr&sol;pubref&colon;WPSStapleton&sol;ar&colon;CMNBAutoLink&sol;destination&colon;https&percnt;3A&percnt;2F&percnt;2Fwww&period;stubhub&period;com&percnt;2Fchris-stapleton-tickets&percnt;2F">Chris Stapleton<&sol;a>&comma;<a title&equals;"Carrie Underwood" href&equals;"https&colon;&sol;&sol;countrymusicontour&period;com&sol;carrie-underwood-tour-dates&sol;">Carrie Underwood<&sol;a>&comma; <a title&equals;"Keith Urban" href&equals;"https&colon;&sol;&sol;stubhub&period;prf&period;hn&sol;click&sol;camref&colon;1100ljXyr&sol;pubref&colon;WPSKUrban&sol;ar&colon;CMNBAutoLink&sol;destination&colon;https&percnt;3A&percnt;2F&percnt;2Fwww&period;stubhub&period;com&percnt;2Fkeith-urban-tickets&percnt;2F">Keith Urban<&sol;a>&comma; John Pardi&comma; Gary Allen&comma; <a title&equals;"Vince Gill" href&equals;"https&colon;&sol;&sol;stubhub&period;prf&period;hn&sol;click&sol;camref&colon;1100ljXyr&sol;pubref&colon;WPSVinceG&sol;ar&colon;CMNBAutoLink&sol;destination&colon;https&percnt;3A&percnt;2F&percnt;2Fwww&period;stubhub&period;com&percnt;2Fvince-gill-tickets&percnt;2F">Vince Gill<&sol;a> and more&period; To magnify the impact of this initiative&comma; every dollar raised from the auction will be matched courtesy of a generous benefactor&period;<&sol;p>&NewLine;&NewLine;&NewLine;&NewLine;<p class&equals;"wp-block-paragraph"><strong>C<a href&equals;"https&colon;&sol;&sol;u7061146&period;ct&period;sendgrid&period;net&sol;ls&sol;click&quest;upn&equals;4tNED-2FM8iDZJQyQ53jATUam2NwTgxttEyHfO5zUGkrn27EDHo&fjlig;OPeKIETbvgrDbYchVD7-2BStm2XGeixnRWOsA-3D-3DNMYI&lowbar;zQ55iVYmGghdP4krZZq-2FjkjAVWwVilA3RA5armS2IoTvYCqyuKg55y8LZGxm84Qvc5PnwizgRl-2BzVOwxcd2w5L-2Fwz-2FYdS2PetB5OmS1giAXdWTsLvmfS8IgYH3RygE3Lb7nZeYtir4Bb7TbeK2trnAdD9CHBvGT4yzm-2FEbnzHwCQRowiievyKc2fb-2BXu4LWD-2Bp4tfaJvUroVcC0mMVvFsDVvvyuKrqHRE3v1uvbvfT06QlBieTORQ8XLPROYxQRzg7GGVrBTRmmQQTWmCIW7mZn9DStEsq4ggmCvJmvceW5lQfYxTiDcSzEHk5qEY1j8Ai9hkQ-2Ba7ql34RrekiIUpE8L4q5DIHnO6-2BWq-2FFOmHOc-3D" target&equals;"&lowbar;blank" rel&equals;"noreferrer noopener">MT Stories<&sol;a><&sol;strong>&colon; CMTRF is committed to fostering impactful conversations and cultivating meaningful donor partnerships&period; Through spotlight features&comma; CMTRF aims to elevate awareness and equip the community with the most recent advancements in CMT research and advocacy&period;<&sol;p>&NewLine;&NewLine;&NewLine;&NewLine;<p class&equals;"wp-block-paragraph">The country music community has rallied behind the CMTRF&comma; with notable contributions from <a title&equals;"Alan Jackson" href&equals;"https&colon;&sol;&sol;ticketmaster&period;evyy&period;net&sol;c&sol;1224809&sol;264167&sol;4272&quest;subId1&equals;WPScmnbAJackson&u&equals;https&percnt;3A&percnt;2F&percnt;2Fwww&period;ticketmaster&period;com&percnt;2Falan-jackson-tickets&percnt;2Fartist&percnt;2F769574&partnerpropertyid&equals;5213910&MediaPartnerPropertyId&equals;5213910">Alan Jackson<&sol;a>’s &&num;8220&semi;Last Call&colon; One More for the Road Tour&comma;&&num;8221&semi; generous donations from Chris and Morgane Stapleton’s charitable fund&comma; &OpenCurlyDoubleQuote;Outlaw State of Kind” and Country Music Television&period; The music community’s combined efforts have buoyed momentum and raised significant funds towards CMT research&period;<&sol;p>&NewLine;&NewLine;&NewLine;&NewLine;<p class&equals;"wp-block-paragraph">As CMT Action Month gears up&comma; CMTRF invites everyone to join the events&comma; contribute to the cause&comma; and be a part of the change&period; Let&&num;8217&semi;s turn the spotlight on CMT and make strides towards a cure&period;<&sol;p>&NewLine;&NewLine;&NewLine;&NewLine;<p class&equals;"wp-block-paragraph">For the full event calendar and more details&comma; visit <a href&equals;"https&colon;&sol;&sol;u7061146&period;ct&period;sendgrid&period;net&sol;ls&sol;click&quest;upn&equals;4tNED-2FM8iDZJQyQ53jATUWqmPSz1CSk0Ow2Q3e2Wlrg-3DawVl&lowbar;zQ55iVYmGghdP4krZZq-2FjkjAVWwVilA3RA5armS2IoTvYCqyuKg55y8LZGxm84Qvc5PnwizgRl-2BzVOwxcd2w5L-2Fwz-2FYdS2PetB5OmS1giAXdWTsLvmfS8IgYH3RygE3Lb7nZeYtir4Bb7TbeK2trnAdD9CHBvGT4yzm-2FEbnzHwCQRowiievyKc2fb-2BXu4LWD-2Bp4tfaJvUroVcC0mMVvFsMW4GgHP30ajIb5kxBiWCTEfM7uM91RC-2BTDfge-2Ft2zIFPUrXMl69UinHqjSLaYvOmOWUq01NodfFlq-2FIb8fHbmORUDrS12-2FGuEeG1U5NnehM33I9z-2BwfM3uN0dGDotCNmQ5x1c49yv10a-2BtbZguIotU-3D" target&equals;"&lowbar;blank" rel&equals;"noreferrer noopener">cmtrf&period;org<&sol;a><&sol;p>&NewLine;&NewLine;&NewLine;&NewLine;<p class&equals;"wp-block-paragraph">Abou CMT&colon; <br><br>Charcot-Marie-Tooth disease &lpar;CMT&rpar; is <strong>one of a group of disorders that cause damage to the peripheral nerves<&sol;strong>—the nerves that transmit information and signals from the brain and spinal cord to and from the rest of the body&comma; as well as sensory information such as touch&comma; back to the spinal cord and brain&period;<br><br>About CMTRF&colon;<&sol;p>&NewLine;&NewLine;&NewLine;&NewLine;<p class&equals;"wp-block-paragraph"><strong><u>CM<a href&equals;"https&colon;&sol;&sol;u7061146&period;ct&period;sendgrid&period;net&sol;ls&sol;click&quest;upn&equals;4tNED-2FM8iDZJQyQ53jATUWqmPSz1CSk0Ow2Q3e2Wlrg-3DFSQn&lowbar;zQ55iVYmGghdP4krZZq-2FjkjAVWwVilA3RA5armS2IoTvYCqyuKg55y8LZGxm84Qvc5PnwizgRl-2BzVOwxcd2w5L-2Fwz-2FYdS2PetB5OmS1giAXdWTsLvmfS8IgYH3RygE3Lb7nZeYtir4Bb7TbeK2trnAdD9CHBvGT4yzm-2FEbnzHwCQRowiievyKc2fb-2BXu4LWD-2Bp4tfaJvUroVcC0mMVvFsKXuMDB-2BLKyHEipsps4h4RnXol-2Fd0caj4KkVmrExFdfqWnD2esWxRz0-2FHzPCx9MLE5sp65Nt0d4bXZITCd0qPWmxlYCh-2FKZOPbTz0-2FN2BS1qdhtCmEVbMydubUvn4drqVFrue-2BA4cNJebFTIr6g-2Ff3Y-3D" target&equals;"&lowbar;blank" rel&equals;"noreferrer noopener">T Research Foundation <&sol;a>&lpar;CMTRF&rpar;<&sol;u> <&sol;strong>is a patient-led&comma; nonprofit focused on delivering treatments and cures for CMT&period; The foundation identifies significant obstacles or deficiencies impeding progress towards a cure and seeks out collaborators to address these issues&period; It’s their mission to raise funds to invest in promising science with high potential of leading to treatments and cures&period; Founded by two patients who are driven to expedite drug delivery to people who live with CMT&comma; the 501&lpar;c&rpar;&lpar;3&rpar; federal tax-exempt organization is supported by personal and corporate financial gifts&period;<&sol;p>

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